Sorry for the Delay in Posting

I'll make this post a catch up on medical things and hope to post again soon with some pictures of Ry.
We have since been in the hospital for a short three day stay in which we ditched the PICC line for a Broviac line. This is also a central catheter. This one has the entry point on her lower tummy and then tunnels below the skin to her groin area where it enters a main vein. It then returns upward through the vein and terminates just below her chest. It has been working very well. We've had it in for a little over a week and there has been no saturated biopatches or oozing. Plus the line is much more secured and there is less risk (although still possible) of it being pulle dout accidently. She is handling it very well and does much better with the dressing changes. It is a nightmare to protect during her bath. I had the PICC line shower protection down to a "T". It never got a drop of water in it while bathing, this one I have yet to keep completely dry. :(
Although the PICC was causing lots of problems, the real reason for Ry's most reason admittance was some poor lab results we had received. Her liver numbers were very escalated telling us that her heart could not support her liver function. This is an expected sign of her heart failure. So once we were admitted they replaced the line and then decided to go up on her dose of Milrinone. We started at .5 and knew the highest dose she could receive is 1.0. It is disheartening to know that we now have her at a dose of .75 and she's only been on it for about a month. The doctor's have told us that sometimes they find there happy place and she may stay at this dose for a long time, but it could also mean her heart is changing quicker than desired. The reality of it is that once we tap out on our dose of Milrinone we most likely would have to hospitalize Ry while we wait for a heart. This is scary, actually terrifying, but not something to dwell on or worry about at this time. (I'm still convincing myself of this!!)
The good news is that she's doing very well. She's becoming more active, her appetite has increased and she's still off the oxygen with only a little pick-me-up when needed. We are trying to enjoy our summer, but are having trouble finding things to keep us busy that are cool and germ-free.
We appreciate each email, card, phone call and well-wishes from you all. It's so incredible to know we have so many folks praying for us. Please continue to pray that Ry will do well with her course of treatment and that we will get the special phone call one day very soon.
I hope you all are having a wonderful 4th of July.
With love . . .