Berlin Heart- Day 3

Rylynn has always been one to keep us on our toes... last night was no exception. She went from sleeping peacefully to desatting into the low 40's without any warning. With some high flow vapotherm and a few med adjustments we got her back to her baselines and a few hours later she was resting peacefully. She however then proceeded to sleep ALL day! She seriously did not wake until 5pm. She woke up, ate some ice chips, drank a little juice and milk and had a few sips of a chocolate milkshake. We even blew a few bubbles at Rylynn's request. She's now fast asleep and probably going to wake up again tonight ready to party (let's hope not).
The doctors had hoped and even requested that Rylynn could sit up today and even dangle her feet off the bed. She was no where near ready for that so they had to settle for us just raising her bed a bit. I'm nervous because tomorrow we are supposed to meet for play therapy, physical therapy and music therapy. But if she's anything like she was today, there is no way she'll be ready for any of that. She's still retaining a lot of fluids and the poor thing is so swollen from head to toe. I hope her skin does not ache from being stretched so tight.
We pray for a quiet night and an even better day tomorrow. I'm so ready to chat with the little munchkin and see her give me a smile.
Good night to all and I'll check in again tomorrow.