Berlin Heart- Day 4

Today has been a good day, but with still very slow progress. Because I posted a little early last night, I did not get to mention that we were able to get Ry carefully out of bed and into my arms. I have to admit that it was not the sweet snuggle that I've been missing. It was awkward and I'm afraid very painful for Ry. She was only able to sit with me for about 20 minutes (just long enough for them to change the linens in her bed). Then she was given her pain meds and tucked in for the night.
Today was another sleepy day for her. She is only on Tylenol right now for pain (which worries me- how can someone only five days after open-heart surgery and huge canulas sticking out of their chest only be taking Tylenol)! The other pains medication seemed to just make her too sleepy. So now she just gets a little morphin before dressing changes or other painful things. Today she already had to meet with OT and PT. They sat her on the side of the bed and Ry just trembled. She was doing amazing and held herself for about 5 minutes, but I just don't know if she was trembling because she was weak or because she was in pain. I wish she could tell me. The crazy thing is that Rylynn has not cried one single time since waking up for surgery. It breaks my heart to think maybe it hurts too bad to cry or mayber she's too scared to cry. I'm sure this isn't the case, but it seems strange that a two year old with pain or anxiety wouldn't let out a few tears. Maybe she's just so stinkin' tough that she hasn't felt like wasting her tears.
Today Ry was still on fluid restrictions so she's not able to drink much. She is on a regular diet and they are encouraging her to eat anything she wants. Unfortunately, the only thing she's had since Thursday is ONE cereal puff. She didn't even have the strength to chew it. It just desolved in her mouth after a while. Maybe tomorrow she'll have an appetite for something. I think they will have to start feeds in her feeding tube in the next 24-48 hours to get her some proper nutrition. I'm not thrilled about her feeding tube, but I do want her to get some vitamins and nutrition soon.
Tomorrow we begin a "schedule" for Ry. I say this loosely because she literally sleeps about 18-20 hours a day right now. But we are scheduled for PT, OT, and play therapy tomorrow. We'll see how well it goes...
I know there is probably more to report, but I am exhausted so I'm heading to bed.

I do want to announce that Ry got a new baby cousin today! Tanner Robinson Hall was born this evening. It's Jamie (Gilly's little sister) second little boy. Ry was absolutely looking forward to feeding the baby a bottle and I hope she is able to soon.

In addition I want to say thank you to all of those who organized a rosary and prayer service for Rylynn on Wednesday evening. It will be at 7:00 at Moravian Hall (Jarrell, TX). If anyone wants more information, email me and I'll get you touch with someone who can help. When I found out about the service I was so touched. I know that God will be there and hear your prayers. All we know to do right now is pray and it is such a blessing to know we have some many joining us. A lot of folks think growing up in a small town is lame. But this is truly what growing up in a small town and a wonderful church community is all about. Again. Thank you.

I know we still have lots of hard days ahead of us, probably a few worse before better, but she's moving ahead. I'll keep you all posted.