7.28.2011

Berlin Heart- One week later

What a week. Ry never ceases to amaze me, she had another very good day. They are forever tweeking her medications, but that will be an ongoing trend with the VAD. I no longer have the knot in my stomach all day, every day; just a mild constant worry. Today she lost two heavy pieces of hardware. Her last chest tube was removed as well as her arterial line. So although she is still connected by about a dozen tubes and wires, those were biggies. We are actually crossing our fingers that we can connect her to all portable devices and poles and make a lap around the unit tomorrow. It will be good for her although quite a chore ( I pity our nurse tomorrow).
Ry's puffiness has almost completely gone now. I can't wait for Gilly to see her tomorrow, she looks like her old beautiful self. I was able to hold her hand as she fell asleep tonight, it was wonderful to watch her pretty face fall fast asleep.
I am quite exhausted myself and am going to try to catch some ZZZs before she wakes during the night. I will try to post a little more tomorrow.

7 comments:

Anonymous said...

Oh Andrea - such great news! I bet Gilly can't wait to get back to Dalla! I look forward to every update as I do for Will's updates. It is so reassuring to know that God is holding both of these sweet babies in his hands of protection and healing. We have not stopped praying and wish we could be there to help. Hang on to all God's promises. And get some rest!
We love you, Linda and family

Anonymous said...

I can't believe it's been a week! I love you guys and miss y'all sooooo much! I can't wait to come visit! Give Ry a kiss for me and get some rest, hope to see y'all soon!

Aunt Jess

Sara Bading said...

so glad she had a good day and got those two things removed. i am sure that made her happy as well. Yeah for that. Wishing her more strength for tomorrow...a lap around the unit will be awesome and I bet she'll do it like a champ

Anonymous said...

Praise God!

From Joey & Glenda Ranne
Rochelle, Tx

Katie said...

I wake up every morning to check for an update. I have been praying non stop and have cried more tears then I care to count. You are such a strong Mommy and Ry is Super Girl!
I am so proud of how well she is doing this far and I pray that her Angel Heart gets to her soon.
We love you guys and if there is ANYTHING we can do to help out just let us know. We will be in Dallas on the 15th for Leah's heart appt. and can bring anything and everything you need. Love you and call if you need anything or just want to vent ;o)
Love ya
Katie Parker

Stan said...

So great to hear. Thank you so much for keeping us up to date. Love to you all.

TCannon said...

Very glad to read this. Thanks for taking the time to do these updates Andrea!