Berlin Heart- Day 6

Let me start with a quick update on Ry. Today was another busy day, but she is still doing great. It was the first day since Wednesday, a week ago, that she ate a bite. I've offered her all her favorite things for days, but she declined it all. But this morning she had two tiny bites of egg, throughout the day she had a handful of goldfish and tonight she ate three penne pastas! Yay! And it was all in the nick of time. They were going to start nightly tube feeds tonight if she didn't eat. They have decided to give her lipids via IV tonight to give her a boost, but they won't make her feel full and lose what little appetite she may have. So we pray for more improved appetite tomorrow and see what the docs say.
Otherwise she did better during her therapy sessions and is starting to talk a little bit. I miss my motor mouth. I hope she's back soon.

Humbled...
Tonight nearly 80 people gathered in my home town to pray for our sweet Ry. Friends came from Lampasas and near Coleman and from many other places to pray together for her. My cousin Samantha was so sweet to organize the gathering and the Deacon was there to lead everyone. Those who attended were family friends new and old and I appreciate them all. Neither Gilly nor I could be there, but we each took our moment at 7:00 to pray. Another service was held in Bremond by my cousins there. Their turn out was great and so many of those who joined there I have never even met. We love you all. Thank you.

Why...
For many days of Rylynn's life I have asked why. Why did God choose to bless Gilly and I with such a special angel? Why should Ry have to suffer when all we want is for her to be healthy? We trust in God's plan, but do not always understand it.
In the last week, while here in the ICU, we have witnessed other families suffer. For some reason, this time has been different than our other admissions. Two families have lost their specials angels. It has been awful to sit in your room knowing the pain they must be going through just steps away from you. Today we learned that another one of our heart buddies, sweet Elijah has also been sent to Jesus. We met Elijah and his mom when we were listed for our transplant in December. They were always someone Gilly and I tried to look to for hope. He was doing wonderfully with his new heart and we want the same for Ry. We felt the same loss and dispair earlier this year when another one of our transplant heroes passed. This fear that we face daily with Ry will never fade. Even in good times, even with a new heart, even with medical strides, we will never rest easy.
But for tonight, I will know that Ry is blanketed with prayers. I will lift those who have left this world and those who are still here fighting. May God bless each of them.

Good night.