I know the day isn't over yet, but Ry is resting so I figured I should post while I have the time.
Today was a VERY nerve-wrecking day. Gilly and I felt nervous with every passing hour. We are overall getting a very good report for little Miss. She is just now 48 hours post-op so we still have a long way to go in her recovery. Last night Ry slept pretty well throughout the night. She had only a little discomfort and we tried to manage it so that she stayed pain-free. She would sleep for about an hourt and then wake for 10 minutes or so. She was asking for water and milk, but only received ice chips after 3 am. Today she had tolerated a little juice and water, but her fluids are restricted so that she does not start to retain more than she can excrete.
The doctors and nurses had a day filled with managing high blood pressure, pain, high glucose, low grade fever, pressures to and from the heart and more. They began her heprin drip to anti-coagulate, did a dressing change, did a chest Xray and more labs than I can count. Like I said Gilly and I have been concerned throughout the day, but all in all the doctors and surgeons are pleased. And if they are happy, we are happy.
We are hoping for a restful night for Ry. Today the Nurse Practioner told us that we should expect some steps back along the way, but right now Ry is running forward!
We are still petitioning for those prayers. We are truly humbled and grateful for all the well wishes that we have received from friends, family and even strangers. Thank you all from the bottom of our hearts.
11 comments:
I found your blog through Kelly's Korner and I just want you to know that your little daughter will be in my prayers. My dad had a heart transplant a few years ago and is doing great. He was on the VAD before his transplant, so I know what you're all going through...except I can't imagine going through it with such a young child. I will pray so very hard for strength for your daughter and your family and that your little girl receives the perfect heart at the perfect time! Hang in there!
I found your blog through Kelly's Korner and will be praying for your sweet Ry. May her perfect heart come soon and her recovery from her latest surgery be smooth.
Becky Piatt shared your story and I'm following and praying for Rylynn!
Praying for your beautiful little girl! God is with you every step of this journey.
A friend of mine read this verses to my husband and me when I was waiting on a heart. They meant the world to me that day. I pray that they will give you strength and courage today.
Isaiah 43:1-3
Fear not, for I have redeemed you,
I have summoned you by name,
You are mine.
When you pass through the waters,
I will be with you;
and when you pass through the rivers,
they will not sweep over you.
When you walk through the fire,
you will not be burned;
the flame will not set you ablaze.
For I am the LORD your God.
Praying for a great day for all of you!
Heart Hugs,
Jeannie
Andrea and Gilly
Thanks for the constant updates, you are are in our thoughts all day long every day. We are praying that heart comes soon. You guys are seriously the strongest people I know. Keep up the great Mommy and Daddy work. I hope Ry has a better day
Praying - literally without ceasing. Kiss that sweet precious baby for us. I agree with Sara - ya'll are so strong and Ry is so very blessed to have you 2 as her parents.
Love, Linda
Praying for your sweet girl! I found your blog through Kelly's Korner and I have a heart baby myself (single ventricle). I'll definitely be praying that the perfect heart comes soon and that you all can feel some peace and comfort as you wait.
Big heart hugs!
~Shannon
I found your blog through Kelly's Korner. I am praying for Rylynn. What a beautiful miracle she is!
It was good to see you yesterday, Andrea. I wish I could say that I don't know what's going on in your heart of hearts right now. I hate that sweet Ry and all of you have to go through these difficult times, but I know that none of this is a surprise to Him. We are praying for that angel heart to come soon, for your strength, peace, and comfort. Big hugs.
The Harrisons
I found your blog through the CMC Heart Transplant Group FB page. I am a heart mommy to a 7 month HLHS boy who right now is a status 7 on the transplant list. Even though I don't know you personally I can't begin to describe how much your beautiful baby girl has touched my heart. I guess us heart mommies share a bond that is unexplainable! I pray continuously that Rylnn's perfect heart comes soon & for strength for you & your husband. She has shown she is such a little fighter already, keep fighting the good fight baby!
Hi, I found your blog through Kelly's Korner. I will be praying for your beautiful little girl. Where I live here in south central Illinois, there is a 4 year old little girl that had the Berlin Heart and now has received her new heart and is doing great. Her father also had a heart transplant at a very young age. She was being treated in St. Louis Mo. Miracles DO happen, and I am praying for a perfect heart for your Rylynn ( such a beautiful name). God speed and give you peace. Carol Hunsaker, Newton Illinois
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