10.07.2011

Update

Sorry I haven't gotten to the computer sooner. I am glad to be writing with a good report though.
The surgery and transplantation took almost exactly 12 hours. There was a lot of scar tissue to have to get through, there was the delicate procedure and then there was a lot of bleeding (due a lot to the anti-coagulation regiment that she was on). But Dr. G gave us a very good report at the completion of the surgery. So then we begin our next journey....
We are a little over 12 hours post-op and Ry is doing wonderful. It was a very long night of fine tuning medication doses and lots of really close monitoring. Because the sedation medication made Ry's blood pressure too low, she is on practically no sedation medication. You all know what this means. She's been up all night! This is almost funny (but not really when you haven't slept since Tuesday night. Gilly and I have been able to take shifts through the night so we've each been able to rest a little. Much like when she was intubated before, she's been able to communicate very clearly. So far we've understood, blankie, water, dip it, fan me, scooch and Puppy.
She looks absolutely beautiful! It's awesome to see so much of her flesh again. No more ginormeous dressing all over her belly. We can even see her belly button.
Today they will consider weaning her from the ventilator (they've actully already pulled her settings down and she's doing great)! Even prior to heading to the OR she received her first dose of immunno surpressive drugs. Since then the steriods and immuno surpressive medications have been in full force.
Upon returning to the room for the first time yesterday afternoon to see her, the echo-tech had just finished up Ry's (second) echo post transplant. He was kind enough to run a few images as we got back in the room. Gilly and I have seen dozens upon dozens of Ry's echo's over the past two years and while we're not experts, we have become familiar with many of the images of her hearts anatomy. The first image that was pulled up showed FOUR chambers! It was awesome, weird, crazy and (as stupid as this sounds) shocking. I was taken back by what I saw. I've never seen a whole heart being echoed. It was incredible. We were so thankful he stayed in the room for the extra 10 minutes to sho w us her new beautiful, healthy, beating heart. Oh what a sight!
I know I have much more to share with you, but for now I have to get back to Ry. She wants us by her bedside and we're happy to oblige. Here's what today holds for each of us.
For Ry: An attempt at weaning her from the ventilator and her nitrous oxide.
Do lots of lab work, xrays, echos, etc.
Get her kidneys working a little more.
Continue to wean blood pressure medications and dozens of other drugs.
And many other things that are beyond me.
For Gilly and I: Try to get some rest!!

Our emotions are still running crazy and I hope to post a bit more about all of this later today. Thank you for all the notes, emails, phone calls, text messages and visits we've had from friends and family. I wish I could answer each one, but please know that we do read and listen to each and everyone. And they help us and encourage us through this wonderful, crazy process. Please continue your prayers for healing and comfort.

25 comments:

Anonymous said...

What a wonderful way to start everyone's Friday morning, so glad to hear she is doing well. Always thinking of y'all. The Hawkins

Anonymous said...

Wow! What a rock star:). Thank you God for your abundant gifts and many blessings. Continued prayers for rest and a wonderful recovery!
Lots of love and well wishes.....
Jimmy, Cindy, Breken and Anistin

Anonymous said...

So glad she seems to be doing well. All of you have been my thoughts and prayers. No one should ever doubt the power of prayer, Ry has shown us that big time. I hope each day just gets better for you all. Lots of hugs your way, Belinda

Anonymous said...

SO happy for you all!!! and thanks for keeping us posted!
still rooting for you in Corpus Christi!
Nanette

Anonymous said...

Wonderful, wonderful news! Keep up the great work Rylynn! We know you can do it!

Love from your fans in Fredericksburg.

Robinanne said...

And everybody said " Amen"! Xo Jolie's mom

Anonymous said...

So excited to see this excellent update this morning! We'll keep praying! Hugs!

Anonymous said...

So glad to see a post this morning! I kept checking last night and tossed and turned overnight. I know you are so busy watching over Ry. I wish I was there to share the huggs. God is so Good!!! Brian and I are so happy for you and the wonderful gift of life. Love you guys so much- we are praying for your sweet angel. xoxocristina

Katie said...

Amazing news! Onward and upward to the rest of your lives! But first... a nap. :)

Karen Carawan said...

What a Joy! So happy to hear that she is just doing fabulous! She will coast right through this recovery, I know it! She's got GOD on her team! Amen!

Such great news! We will wait with baited breath for your next update - but please take all the time you need - soak up each and every precious moment with Ry!

Prayers continue for LOTS Of rest for you and Gilly, healing and comfort for the three of you!

yvonne alcala said...

Way to go Ry! Keep showin good progress. Hope and praying that her healing process goes well. Praying for her and ur family!!

Kathleen said...

What wonderful news! Prayers continue--

Maddie said...

Keep getting stronger and better, Ry! We're praying constantly for you.

Anonymous said...

I first heard about dear Rylann through facebook and have been keeping up with your blog for a while. I have a 2 year old as well and we say a special prayer for Rylann every night. Last night when I got on your blog and saw your wonderful news I started crying. What an amazing miracle of God. We will continue to pray for Rylann as she continues the full healing process.

Anonymous said...

Praise God! Will continue to pray for Rylynn and your family!

Anonymous said...

When you reach a certain level of "tired" its either laugh or cry and praise God you can choose LAUGH now! I CAN NOT WAIT to see her pink little cheeks and see her out and about again and looking at all her favorite animals. Next summer we will ALL get together try to burn my house down at least once a week!!! haha My heart is so filled with joy for you I just can't even say...xoxoDusty&Cindy

Anonymous said...

You dond't know me but.... I am Debby Brock's sister in law, your Mom's friend from high school in Uvalde. She has told us of the ordeal and am now keeping up with your blog. I am so glad to hear of the good news. You and your family have been in my prayers and hope that Rylynn continues to heal.
Bless the family.

Pamela Curran

Barbara Beer said...

Prayers continue for everyone involved...

Anonymous said...

Wonderful news! I am so happy for Ry and your family.

Anonymous said...

I love Cindy's comments! It is miraculous, and overwhelming to see this happening for Rylynn, and her Mommy and Daddy! I can't imagine the roller coaster you are on. What a blessing God has provided. Your faith has been and will continue to be an inspiration to so many others. Thank you for taking time to share your and Rylynn's story! There are continuing prayers going up for all of you and the Angel Heart Family! Gig 'Em Rylynn!

Nick and Ann Hamilton said...

Go Rylynn! God Bless you! We are praying for you!

Anonymous said...

Go TEAM RYLYNN! We are so over-the-top (is that possible?) with unrestrained joy for each and every one of you. Congratulations on the miracle of the new heart, the successful surgery. We continue to pray for continued blessings and every success in Rylynn's recovery. SO happy for all of you.

The Clements
Eastland, TX

Ataloa Morrison said...

I'm completely in AWE of God's GREATNESS!! Continued prayers for you, Gilly, Rylynn and the donor family. XO

Shannon said...

Oh my goodness! This is the best news ever. I walked into work to see that my favorite little patient got a new heart! I am an xray tech and have been praying for this miracle! Congrats Rylynn! I will continue to pray for your family and the family who made the selfless decision to help save sweet Ry!

Anonymous said...

"At Close of Day"

God,
bless all young mothers
at end of day,
kneeling wearily with each
small one
to hear them pray.

Too tired to rise when done...
and yet, they do,
longing simply to sleep
one whole night through.

Too tired to sleep,
too tired to pray...
God, bless all young mothers
at close of day.

by Ruth Bell Graham
(wife of Bapt. evangelist, Billy Graham)

Dedicated to the Amazing Mother of Rylynn Riojas!!!