I apologize again for making this a short post. There have been so many emotions and thoughts that have flooded me over the past eight days and I want to document it all. However, Ry still thinks it's a riot to keep me up most of the night. And our days are as they always have been, very very busy. The only quiet time during the day is when she takes her nap. I usually spend that time grabbing a bite of lunch and taking a nap if I'm lucky.
However, I could not fall asleep tonight without sharing a bit of good news. Today Ry had an echo done. Drs are still trying to closely follow the progress the right ventricle. After a quick look today, the official report read: right ventricle function is normal. This is incredibly good news! More measurements and images will be taken in the Cath Lab on Monday, but we couldn't be happier with this.
On an almost equally exciting note, yesterday the dietitian ran a calorie count on Ry and she took 100% of her caloric needs by mouth! This is quite an accomplishment. So for now, no night feeds. We will continue to monitor her intake and make sure she's getting all she needs. This could fluctuate over time, but it's a great start. The feeding tube will not be going anywhere anytime soon though. Ry's med volume is quite large and we're having to ease into her med regiment. For now she taking about 20% of her meds by mouth and the others are going down her tube. This wouldn't be so bad except that the volume of medication will continue to go up over the next several days.
That's all I can muster up for now, but I will try to post some more later this weekend.
2 comments:
What an awesome God we serve! Heavenly Father, thank you for your abundant gifts and many blessings. Please continue to be with Miss Rylynn and her family. Please continue to spread peace and comfort to the donor family too.
Blessings, prayer and love coming your way!
Yay for answered prayers and God's love and mercy! Thankful for such a great update on her "right heart" and on her great eating! So awesome! Not surprised to hear about her being a "night owl" though. She doesn't want to miss a thing does she? LOL. Hang in there momma. We'll send some prayers for some restful sleep for you AND for Ry - she needs her beauty sleep too!
Praise the Lord for such positive recovery!
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