Wow, it hasn't even been 48 hours since Ry's transplant and things are moving right along. She has had a really great recovery so far. Things have been slow and steady, but she's moving in the right direction. All the meds are slowly being weaned and the big news for the day is that SHE'S BEEN EXTUBATED!! Just an hour ago they were able to extubate. She's doing great and still begging for ice, water, apple juice, and milk. It's not been easy to distract her, but we're trying. It's going to be another 11 hours before she can eat or drink.
We had hoped when they extubated that her CVP numbers would drop a bit, but unfortunately they have not. I am praying that they will come down soon. This is a measure of pressures in her "right heart", which is still struggling a bit. This is common, but not necessarily good. But with time we hope for improvement.
Her blood pressure and heart rate have finally reached an appropriate range, her fever never came back after it broke the first night and she is finally starting to make a fair amount of urine. Her belly is still very distended, but we hope very soon her bowels will wake and start moving along. Earlier this morning they were able to remove one of her three chest tubes. In the coming days, the other two should be able to come out as well. Last night one IV was taken out, but she's got one more in her foot, one in her hand and her big IJ line in her neck. I'm so ready to get those removed. She will keep her Broviac line and her PD Cath for now. Her cannula sites look really good now and we pray for continued healing for those (sometimes they can cause some problems).
Last night, Ry, Gilly and I were all able to get some much needed rest. So today feels like a great day. I will update more as soon as I can and plan to upload some pics later today as well.
It's still just amazing that this blessing has been given to Rylynn. We never knew if we'd get to experience this second chance at life. We love her to the moon and back.
8 comments:
Way to go Rylynn!!! Great report - we expect nothing less!!!! :) We love you to the moon and back too and can't wait to come play! Love, aunt coo-coo
Thanks for the great update!!! We are so glad to hear that Ry is doing so well and will pray that those pressures in her right heart come down soon! And so glad you all got some rest last night too!
Looking forward to pics and more great news
sending our love and prayers. .
Linda and Carley
Praise the Lord! such wonderful news! Rylynn is just doing so great - I am sure all of these things will heal and improve with a little time and we will say some extra prayers for those.
I cant imagine how grateful you and Gilly feel for each moment you have with Ry since she's received her new heart. We are just beside ourselves with joy for you both.
God has been so faithful to fulfill every prayer that has been sent up for Ry and I know He's not going to leave her now. He has some big plans for her and an amazing story! We've (all us here in San Antonio that have been praying for her) all been amazed by God's intervention in her life and have each been moved spiritually because of it.
We are so thrilled that she has been given this second chance at life and look forward to hearing about her running and playing with the best of them really, really soon. :)
Words can not express how happy we are to hear Rylynn is doing so great. We will continue to pray and also pray for the wonderful family who sacrificed so much.
Love all of you,
Richard and Lisa
Words cannot begin to express how happy we are for you guys! We believe that God has a special plan for Miss Rylynn, and we can't wait to see what her future holds! Prayers for a smooth & speedy recovery!! God is SO good!!! XO
You don't know me but I ran across your daughters story on a hunting forum I frequent. Your story hits very close to home for me. We just got back from a two week stay at Texas Childrens in Houston with our newborn who was diagnosed with a congenital heart defect. Just so happen I caught your story on the morning of her transplant and have been praying ever since. I will keep checking in on her and praying for your family.
"post transplant" what unusual beautiful words to our eyes and ears!!!
Praising God for all he has done this week & continued prayers always for Rylynn, you & gilly, and EVERYONE involved!
Blessings on the week ahead!!
Love, The Linebrinks
Prayed for Rylynn all during the Army Ten Miler!! I wore a shirt with her name and COTA website on it!! Hugs and prayers to Rylynn and all of you!!
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