Why does it always have to be something

Ry and I had a great weekend with Gilly.  He was able to come in Thursday night which was really nice.  Ry was feeling good, talking like crazy and even a little silly.  It was so great to spend time together having lots of laughs.  She continued to great in thereapy sessions and even enjoyed a couple of new places to see in the hospital.  And an added bonus is that she slept great each night.
On Thursday night, Ry hung out with Mimi and Ryan while Gilly and I grabbed a quick dinner off campus.  We had not been able to eat a meal together in a couple of weeks so it was nice and as you can see, Ry really enjoyed some silly time with the girls.

Monday was another good day, and I even got a little treat myself.  My sister, Jessica, my best friend from high school, Cheryl and my hairdresser and friend, Amy treated me to a few hours out of the hospital and a fresh hair-do!  It was so nice to be off campus for a few hours and fun to have some girl talk.  Thanks girls!
Tuesday was another good day, but Ry wasn't her silly self.  Mom and I both commented on her slight change in demeanor.  After our second stroller ride downstairs we came back to the room just prior to shift change.  Rylynn suddenly complained of her head hurting, grabbing it and crying out.  Then only minutes later she threw up.  It was the strangest thing.  The docs immediately wanted to run a CT to make sure something had not happened nuerologically.  (We had been having some issues with her anit-coagulation levels and wanted to make sure she did not have any bleeding on her brain.)  She seemed to be feeling much better as we had made our trip down to Radiology and she was even up for taking a detour on our way back so we could look at all the lights outside.  We never get out of the room after dark so it was fun for her to see a few interesting colored lights outside the hospital windows.  Luckily, results came back quickly that everything looked fine.  Unfortunately after our nightly bath, she was sick again and throughout the night.  By 2:30am this morning she finally had stopped being quite so ill (only ocurring now every couple of hours).  She did spike a fever though.  Around 4:00am they drew blood cultures, a urine culture, and a culture from her PD cath.  We also took a belly xray and then later a chest xray.  It was a very exhausting night for us all.  Our poor night nurse was so busy all night long... sorry Katie!
So preliminary results on the cultures have begun coming back.  It looks like there is an infection with her PD cath.  we are starting antibiotics right away (although its been an hour and they still aren't being administered).  We are hoping to see a turn around within the next 24hours.  As of right now the team has no decided to change her status to a Status 7.  If in 24 hours we don't see some major improvement, she will temporarily have to be taken from the transplant list.  I just hope Ry can rest adn stay somewhat comfortable for the next day or so.  Right now she look awful and feels so crummy.  Her color is completely drained and we've changed her pillowcase already twice this morning because she is completely saturating them with sweat. 
Ry was expected to have an exciting end of the week, I sure hope she's feeling well enough to fulfil her social obligations...  she's such a busy little lady!
Here one more funny video of Ry.  Every evening I have to fight her to get in bed.  She wants to "sit purple chair".  Which means she wants to sit on my lap in the purple chair.  This how hard she does not want to go to sleep in the bed. 

She insists that she is not tired and still wants to play.  Notice her awesome PJs that match puppy's awesome PJs.  (These nurses spoil her way too bad! She gets the coolest things from them.)  I think I have a better picture of the two of them together.  I need to get it up loaded for ya'll to see.
I'm going to try to catch a quick nap while Ry is sleeping.  For two days in a row I'm going on only a couple of hours of sleep. 
Please pray we can have Ry feeling better really soon.