So proud!

Every day I'm amazed at what Rylynn accomplishes in her therapy sessions. They really push her and she accepts and conquers her challenges. Today she amazed me! We are proudest parents ever!
The therapist asked if Ry had some shoes because she wanted her to go for a walk in the corridor. This was so exciting and crazy. Rylynn had only taken a few steps at a time from her bed to the therapy bench or vice versa. Today, my little rockstar put on her Sperry's, and took a nearly 10 minute walk around the ENTIRE unit!!!!! It was incredible! She'd stop for a moment to catch her breath and ask for me to hold her, but she'd accept my hand instead and push on. And remember folks... we are a mere 11 days post op and she is on no scheduled pain medication. She simply takes a dose of Tylenol as needed which has been only about once a day for the past several days!
Here's a clip of it. I know it's not the best quality, but you get the idea.

Tomorrow may be a very big day for us here. We are tenatively set to move from ICU to the 8th floor Cardiac Unit. This is such an accomplishment. There have been some kids that never get to leave the ICU (for months and months and months) because their condition is so poor. And most don't make it out for many, many weeks. This was one of our greatest prayers. On the 8th floor life is slightly less uncomfortable. Ideally she will sleep better, play better, live better. We try to think of it as our Dallas apartment with a view of downtown. We pray that a bed opens up and we can make the shift, but if not we hope it's in our near future.

Ry and I miss Gilly so much when he leaves. We had a great weekend with him and can't wait for him to hurry back. He makes Ry laugh the way that I can't. They play their silly games and giggle about nothing at all. I hope when he comes this weekend we'll be upstairs so that the three of us can eat a meal in the same room at the same time! It's been two weeks since we've been able to do that.

Selfishly enough I'm also really looking forward to having a bathroom in our room. I'm so tired of showering in the public shower down the hall. They are supposedly cleaned at 4:30 and I get out there to shower at 6:00, but they still seem pretty yucky. Oh well...

One last thing. Since I know tomorrow may be too busy to blog. Rylynn will be having her PRA numbers checked on Thursday. We should have results by Friday. This is a very critical test and one that we need extra prayers said. This will show us how Rylynn's body responded to the blood transfusions that she has received and ultimately her elgibility for a donor. Please, please pray for favorable results.

I hope you all have a restful night. And I sure hope Ry does as well.