Ry just got vallum so I've got to be quick so I can catch some sleep before she's up again. I have to bullet this post.
~Tomorrow Ry is scheduled for a heart cath to explore her Glenn pressures and the back-up pressures that she's experiencing. Most likely little can be done, but if something can they will.
~Ry is NOT sleeping at night. She sleeps for anywhere from 2-15 minutes before asking to be scooched, fanned, for water, to rub her chest or to hold my hand. Just for the record I have to note the drugs she received last night to help her sleep. The docs said it could have put an adult out for days.
9:00 Ambien
12:30 Adavan
2:00 Morphin
4:00 Benadryl
5:00 Adavan (double dose)
~Today we met with the Pain Management team to discuss Ry's comfort while awake and sleeping. We have a new game plan in place for her. I hope it works.
~Fluid is worse today, but we're pushing pushing her kidneys to unload. I hope we see results soon.
That's all I've got time for now. I'm exhausted and am hoping for atleast a few hours of sleep. Please pray that Ry's cath goes well tomorrow. I hope they find something to tweek to lessen her pressures (We're pretty sure she's got some significant headaches. It's supposed to be like standing on your head all day.)
Good night to all.
12 comments:
One day Ry is gonna read all of this and be amazed at her own strength. And yours!!
Praying for comfort, peace and rest for you and Ry and a successful cath tomorrow.
No wonder she's up all night if he pressures make it feel like that...but dang she is straight up impressive if she had that much sleeping meds in her and she fought it off. Her teenage years might put you over the edge if she can stay up all night long now. Hope today's cath goes well. I don't know how you are still able to function on no sleep...you are amazing too. I saw last week's Dallas Med episode on youtube, I see Ry's debut is on this week.
Hang in there Andrea...Ry is one TOUGH little girl that is for sure.
It was so good seeing you this past weekend. I am amazed at your strength and faith. You are one special mom and I know that is why God chose you for Rylynn. She is so precious and we are all praying for her and you. God bless.
Aunt Dorothy
We are praying that everything goes well for Rylynn's cath today and for God to guide the doctors and nurses in everything they do for her. We are praying for restful sleep for both of you and for those fluids to start coming off. Hang in there - one day at a time. God is on your side. We are all praying for you and Ry and Gilley.
She's really strong and so are you guys! You are in God's care~
Much Love,
Nanette
ry is so precious and know that we are all praying for her night and day.we love yall all so much!
-much love,lily mahmoud
Andrea,
I am praying for you guys. Just like Gilly said, it only takes one heart. Keep your chin up, beautiful. I am praying for some favorable news. I pray that they can keep Ry comfortable and that her little body can get rest. Praying that you can get some rest too. Stay strong in the Lord, He's got his hand on you. Love you!
May God guide the doctors and provide rest for Ry. God bless you guys. I wish there were more we could do for all of you.
A friend told me about your family and the struggles you guys are going through. Even though I don't know you and we have never met, I will say some prayers for your family and precious daughter. God bless you all and grant you strength.
Still praying for that precious little angel, and of course the strength of a wonderful mother. YOU. We are praying for you guys.
Love,
The Rich Family
The love of a mother is a powerful thing! I pray for you all some rest and peace. I know He holds us in the palm of his hand and I hope it comforts you tonght. Love Dusty&Cindy
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