Wednesday was a better day

I was hoping to post a nice long entry last night about what a good day Ry had. It was nice to see her finally feeling better. When she woke up you could see it in her eyes. :)

So our sweet nurse decided that we'd have a day full of activities to make sure Ry didn't stay in bed and sleep on day and in turn we were also hoping for a good night's sleep to follow.

Insert side note: We've taken a new and strong approach to make things in Ry's daily life more low key. Her room is now decked out with signs asking staff to only come into her room 3 at a time and for us to conduct as many of our medical conversations as possible in the corridor rather than at her bedside. Many times during the day there are 12 people in her room at once. I know that Ry is loved and doted on, but sometimes she doesn't truly appreciate all the attention. So from now on our excursions, therapies, and daily routines will be done with as few staff as possible.

Back to our day...

We took Rylynn to the playroom on the 8th floor for a little coloring time. She started crying the minute we got there, but we explained that she didn't have to do anything she didn't want to and it ended up that just her and I colored for a half hour while everyone else just kept their distance.

After dressing change, a feed, a sonogram, a chest Xray, a vibration session, and a really quick nap, we took Ry down to the gym for a PT/OT session. She did pretty well, but still apprehensive about it all. We also got to see the trains while downstairs. Ry was ready to get back so we headed back up.

We spent the rest of the evening coloring, watching movies, and visiting with Aunt Jess and PaPa (my mom's been here this week helping out with the sleepless nights).

We wrapped the evening up by watching Children's MED Dallas. Ry was her cute little self and it broke my heart to see how well she was just a couple of months ago. They only briefly introduced her and plan to feature her story more next week so stay tuned.

Our plan to really tire Rylynn out worked quite well. She slept (with only a few interruptions) until 3am!!! This was so awesome! I woke up at 3 ready to go! Unfortunately, at 3 they did a chest Xray and vibration session. It was 4:30 until they left her alone and by then she never went back to sleep real well. So it wasn't ideal to not be able to go back to sleep but those 4.5 hours were wonderful.

I hope this cath today doesn't create any setbacks just as it felt like we were beginning to make headway. My real hope is that it will allow her to breathe easier and feel even better.

Keep praying there is a donor heart out there for Ry. It's the only thing that will truly answer our prayers of a happy, healthy Rylynn.