Rough Day in ICU 3206

The past two days have been really rough for Rylynn. She has not felt well at all, with a come and go fever and no appetite or energy. She just isn't happy. She has cried a lot and it breaks my heart, I wish she could communicate better what is bothering her. She slept terrible again last night, so tonight we are suspending her feed to see if that will make her more comfortable and rest better. I'm crossing my fingers that it will.
As we speak she is receiving a blood transfusion :( Her levels have been borderline low, but her body was making new blood. However with all of the blood drawn for cultures because of the fever she was creeping even lower. Her blood pressure has been creeping higher as well and tonight her sats dropped significantly. Her body final said she needed it. This while just today we ran her PRAs. We will not have those results till tomorrow, but please pray for favorable results. My stomach is just upset with worry. Gilly and I are praying for some good news. This is very important for her donor match and therefore for her odds of receiving a heart.
On a follow-up note, all of her cultures have come back negative thus far which is great news. There is no sign of infection so far. They are continuing her antibiotic until tomorrow though to make sure.
Another follow up note. Her irritated canula site is even worse today. Cultures on it showed no infection, but you wouldn't think it by looking at it. I worry that it hurts her, but again it's very hard to communicate with her although we do the best we can.
One other battle we are currently fighting is some fluid build up on her lungs. Her chest Xrays have been looking great and holding steady until this afternoon. An Xray showed quite a bit of fluid built up so we've upped her diaretics and are trying to pull it from her. So far she's responding pretty well and I pray we've dodged havin gto be intubated. (My heart sank when they mentioned intubation this afternoon.)
It's been a long day and I'm ready for a little rest. Please, please lift Ry up in prayer. This is a group of typical challenges that a VAD patient faces and has to work through, I just wish it hadn't happened all at once. I hope she has a better day tomorrow. I miss her smile and it breaks my heart when I know she hurts and I can't make it better. I hate it when she spends the day in tears.
Good night to all, I hope I have a better report tomorrow.