Ry has been holding steady and we have been weaning her from teh oxygen today. In the last hour they just turned off the last bit of it, so she is now breathing room air. So far, so good. Her sats are staying right at 75 which is th elow threshold they want her at, but we are still considering this a small victory. There is no way to know yet if they will let us go home without it, we'll watch her overnight. The plan was to be dischanged tomorrow, but I know there is a good possibility it may still be Wednesday. We will have a follow-up with the transplant team on Thursday. We will have to stick around Dallas until that appointment, but we are desperately hoping that we will be able to go home while we wait for her heart.
Thanks for all the prayers that have been lifted for Rylynn. We pray that she remains stable and doesn't struggle. We pray for the wisdom of our care team. We pray for strength and patience. We pray that if there is a family out there who has to endure a tragedy and loss, that they will choose to donate life to others who wait for a miracle.
I hope you all have had a wonderful and safe Memorial Day.
With love . . .
4 comments:
Thanks for the updates.....we have u guys on everyones prayer list and we have lifted all ur prayers.....u guys are amazing parents and amazing examples of faith....stay focused on Him and remember 2 Samuel 22:33:). Lots of love and support.....
Jimmy, Cindy, Breken and Anistin:)
Hey a small victory is a huge one! Your last paragraph couldn't have been written any better! I pray there is someone out there that does chose to donate for precious little Rylynn. During the horrible tragedy of what happened with Ryan, there is someone that went on to live a normal life because they have his organs and I hope someday I get to meet them. I pray the same for Rylynn. She has been a trooper through all this. Give her big hugs and kisses from Auntie Chur Chur!
Hope the last couple of days have been great for Ry and you and today finds her discharged - We are still praying for strength, stability and a matched donation. our love, Linda
Aunt Tammy wants in on the bubble gum bathrooms! Love you Sooo much!
Post a Comment