5.25.2011

Recovering from Cath

So the Docs did decide to have a Cath performed today. It was a miserably long day. Ry was NPO (no food or drink) beginning at midnight and we did not end up going into the lab until 2:45!! Rylynn begged me for water all day in the sweetest sadest voice. It broke my heart not to give her what she really needed. She even began asking GiGi and the nurses for it.
The cath did not provide us with any unexpected information. The pressures in her lungs is higher than in December, there were not a detrimental number of collaterals developed and as expected there were a number of AMVs. The nitric oxide test showed positive results, so we are began Ry on a new med tonight. I am sad that this is our first med to be administered every 6 hours. I know we will have so many medications post-transplant; many of which will be every 4-24 hours. We have always just been so lucky that they've been daily or twice a day. The new medication should help open her caprillaries a bit carrying more red blood to her body. This will hopefully raise those saturations levels. It will be several days before we would see any results of the medication, but we hope to see some changes.
Rylynn came out of anesthesia well. We are still monitoring her BP carefully because it's been quite low since the procedure. She was up for a couple of hours, drank A LOT, played play-do and then crashed. I am hoping she sleeps well through the night.
We are STILL in ICU! We're hoping that by tomorrow or Friday we can be moved up to the floor. At this point we just have to conitnue to reach a safe point to take Ry home. We would love to go home without oxygen, but she's still on 5L so we have a ways to go to wean her down.
I am exhausted and am calling it a night. I just hope after an afternoon of resting that Ry will sleep well.
I'll post again soon!
With love. . .

3 comments:

Anonymous said...

So glad for this update ~ grateful that Rylynn did ok after cath procedure! will be praying for a restful night and improvement tomorrow. xoxoxo Linda C

Sara Bading said...

Thanks for posting all the updates, Ryan and I are thinking of you guys ALL the time, and are glad you have the blog to keep us up to date on what is going on. Hopefully the new meds will help her out. We're hoping for improvement for the new meds.

Heritage Daycare said...

Ry is in our thoughts and prayers. We miss her sweet face here at the daycare. Give her our love.

Shelly