We're still here in ICU :( Ry had a great day yesterday! She was acting like herself, ate well, shared stickers with every nurse, doctor, nurse practioner, respiratory therapist, specialist, etc. who came in the door! She was her polite and social self. No more grunts for her visitors!
We had a pretty good night too (which is when Rylynn seems to always desat). She is still on 6.5L of oxygen which really is our only obstacle. I wish we could get her weaned from it rather than having to keep raising it. The PICC med seems to be helping her body in many ways though. All her other organs are functioning great and circulation is strong.
There is talk that we may get to move up to the 8th floor today, but we're still not sure. Docs haven't come by yet this morning, so we'll just wait to see what they think.
I appreciate all the prayers and kind words from our friends and families. Please stay the course with those prayers.
With love...
5 comments:
Many prayers and thoughts coming your way!!!
Andrea, my name is Rex Stephenson. A friend of mine told me about Rylynn here in San Angelo. Our daughter Reagan was diagnosed with dialated cardiomyopathy when she was a week old. She recieved a heart transplant February 15, 2008. Know that we will be pray for you and your family during this difficult time. Here is a link to a Children's Miracle Network commercial Reagan is in.
Andrea, my name is Rex Stephenson. A friend of mine told me about Rylynn here in San Angelo. Our daughter Reagan was diagnosed with dialated cardiomyopathy when she was a week old. She recieved a heart transplant February 15, 2008. Know that we will be pray for you and your family during this difficult time. Here is a link to a Children's Miracle Network commercial Reagan is in.http://www.youtube.com/watch?v=huaJdnXLXMU
I am praying! Frequently and loudly for you guys. As always I am amazed by your strength and composure. Don't hesitate to let me know if you need anything at all. xoxo
Andrea, I am just looking at your blog - we had no idea until just now that ya'll were in Dallas. Know that we are praying daily for you and Gilly and Rylynn. You are so full of strength and grace, and such an inspiration to us - let us know if there is anything we can do from Lampasas other than pray.
Tell that sweet girl Carley says Hello!
Our love to all of you, Linda
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