Up Here in Dallas

So we've made ourselves comfortable and have refamiliarized ourselves with "Jack the Rabbit" dining and parking passes. This time around it's very different. Rylynn does NOT want to sit in her room, she wants to walk the halls or play in the play room. That's been the hardest part of passing the time here. I could not be prouder of how she has acted with all of the doctors and nurses, she is such a trooper!
So far we have received the standard EKG, Echo, and chest Xrays along with gathering her stats 24 hrs a day. Tomorrow we have been scheduled for a cath and pre-transplant work up. We are currently set for the 11:00 slot, but hope to be bumped up. Either way we will see a similar procedure to one that we've done before. They will put her under, give her a breathing tube and hope to enter through the groin. All of this will take a few hours.
After reviewing the heart function that has shown up on the echo here, the Drs agree that they don't expect to find anything that can be repaired while they are in there, but are going to measure pressures and check some functions between the heart and lungs. On the first night we were here they were hopeful they would see something that we could surgically repair, but as time passes is seems we are definitely on the transplant path.
Gilly and I have a million questions and concerns, but won't sit down to conference with the team until after the cath and work up.
Tonight we pray for a smooth cath procedure and recovery. Although she has done well in the past we must remember her heart is not as strong now. We also pray that the labs will show that Ry is a good candidate and will be an easy match. Please lift her in prayer.
Good night.
With love . . .