So I guess you can try to prepare yourself for bad news, but it is no consolation as you hear the Doctor talk.
Ry was wonderful throughout her appointment this morning. It is often a screaming marathon and very difficult, but this morning she was perfect. She sat still and quiet through each piece of our two hour appointment with practically no tears. We were so proud and felt it was a great sign of good news to come, but unfortunately that was not the case. It seems that Ry's little heart muscle is getting weaker and even quicker than the Cardiologist could have expected.
What does this mean?
Well first of all, a not-so-happy Thanksgiving. :(
But more importantly it means we are headed to Dallas immediately. We will be in Dallas on Monday morning to admit ourselves. Because of the holidays, we were not scheduled for a cath, but Dr. Lemler says get yourself up here right away and we will work you in on Tuesday or Wednesday. They want to perform a cath (even though they don't think they will find anything other than what they already know) and while she is out, they will draw lots of blood and lab stuff. This will be used as they immediately place her on a transplant list. Yes, that is where we stand. Knowing that our very active and healthy and wonderfully perfect little girl needs a heart or we will very soon start to see her getting very sick. It is still so hard to comprehend, understand and accept.
I don't feel the need to continue this entry. We are overwhelmed with unanswered questions and look forward to talking with the transplant team next week. Mine and Gilly's hearts hurt and ask that you pray for our strength and for Rylynn's health.
We will keep you posted next week, please check back.
With love...
5 comments:
We have you all lifted up in prayer...the taylor prayer warriors have been notified and the armors are up!
Lots of love and prayers,
Jimmy, Cindy, Breken and Anistin
I have my prayer group praying for all of you! Love and prayers sent your way!
There are many people praying for you guys. A lot of love and prayers sent your way!!
Love,
Dennis, Kaci, & Mason
You know we will!! Just get as much rest as possible...will be checking back on you guys soon...
Love,
Nanette
Praying for Rylynn and for your peace and strength. The Lord is with you; He will not forsake you or your precious child in your time of need.
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