1.27.2012

Little Speed Bump

This will have to be rather short, as I did not pack the laptop for this trip so my iphone will have to do.
We are currently admitted on C8 :( The good news is that Ry is doing fine (much better than yesterday evening). Yesterday she had a long day including a morning filled with labs, echo, exam, Xray, EKG, etc. all while being NPO. She was a great girl as always as we waited till 2:00 before we even went back! So she wasn't out from cath/biopsy and finished having her line removed till nearly 4. We were happy to remember that her infusion would only b 2 hours rather than 4 though since it was her last. So after a couple of hours in recovery w the infusion going we were leaving campus by 5:45.
Ry was slower than usual coming out of anesthesia. So Gilly and I were watching her closely as we pulled out of town. We got about an hour down the road and pulled over to take her vitals and guess what... She had a fever and an elevated heart rate. So we called Childrens and were told to head back. We came through the ER where she spiked a fever of 103.6. We were soon admitted and with some benadryl and tylenol she did fine. However, a immuno-surpressed child is treated with extremely proactive actions. Ry was cultured and started on two IV antibiotics (in addition to what she received in cath yesterday). So we'll be monitored for 48 hours.
Yesterday's cath also yielded really high wedge pressures. This is the number we've struggled with each time. They had come down to 16 two weeks ago which is only slightly above our hopes of reaching 12ish (although normal is about 7-10). They were as high as 22 several weeks post transplant but yesterday they were 24! Although high wedge pressures are often a sign of rejection, all of her other tests appeared to show a happy heart. The real indicator will be today's biopy results which we hope to have late today.
This should sum up our last 30 hours. I'll keep you all posted as things develop. We are glad Ry is feeling fine today and we are thankful for that. Now I'm really hoping she takes a long nap. I am so tired :)

4 comments:

Anonymous said...

Praying.

Anonymous said...

Commit your way to the Lord, trust also in Him, and He shall bring it to pass (Psalm 37-5).

Sending prayers, love and comfort your way.....

Jimmy, Cindy, Breken and Anistin

Anonymous said...

Hey, it is going to be okay.

Karen said...

We are praying incessantly for little Ry and that this is truly just a little speed bump. Will pray a little harder for those wedge pressures to right themselves and for her to be back to her happy little active self! And of course prayers for you and Gilly through this.

Hang in there.