This week we headed to Dallas for a biopsy on Tuesday. Yesterday we received the results that Ry scored a zero! This is once again great news. Her echo, EKG, and Xray all looked great and the heart cath showed little to no improvement to her wedge pressures. They are hanging out right around 15-16. We hope to see this trend down soon, but for now we are thankful for the good report and are enjoying our crazy little girl.
She once again did great during her day at the hospital. We had an early start, arriving at 6:15. I'm always so proud of her. This time we did not have to hang around 4 full hours in recovery so we were able to leave just after noon. We stopped for a quick bite and then Ry slept the WHOLE way home. We talked with our doctors and although we have hit our 3 month mark, there is little change to her medications at this time. We hope to see things taper off at 6 months. However, because she is doing so well, we are able to try to begin our resumption of a normal life. This being said, we are amidst the worst time of year to rip off her mask and start to be around others. But baby steps. We will continue to use lots of precautions and stay in a lot, but it's great to know we're heading towards normalcy.
Thanks for checking in on us!
10 comments:
Yea, Rylynn! So good to hear how well she is doing! Blessings to you three!
Fantastic news!! It is truly amazing that things are progressing so well and you are making a move towards a normal life!
Love, Zach, Lucy and Bryce
Blessings! What a mighty God we serve:)
Prayers and love coming your way!
AWESOME!!!!! Is there anything else to say?
I"m so happy to hear her wedge pressures are improving! And can't beat that zero! I know how hard it is to adjust to "normal" life, so y'all are in our prayers now as always. Big hugs to all three of ya!
Maddie
Love the great news!!! Thanks for the wonderful updates. :)
Yay, Rylynn!!
Love,
Dennis, Kaci, & Mason
So happy to hear the great news. Keep it up Ry. Hang in there Mom and Dad, your doing great. Hope the house is coming along.
Richard and Lisa
thanks for the great update1 now, go enjoy that crazy little girl! love the pictures - you all look great! so happy for you guys!
yay God!
What?! I worked on Monday night...so I would have totally been there Tuesday morning! So bummed I didn't get to see you, but SO glad to hear everything is happily moving in the right direction!
So glad things are going well. The Children's FB page said that they were working on a sequel to their tv series. Have camera crews been by again for follow-up visit?
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