I just wanted to let you all know we are doing wonderful! Life outside the walls of the hospital have been great. Ry's cath this week revealed some undesirable high wedge pressures. This led us to a short stay in ICU while we got an echo, EKG, and chest Xray, but because all of these showed little to no change from her last, we were free to go after 5 hours. It was just enough time for some of our favorite nurses to come by the room and say hi, but I was so relieved that we were able to go home. We anxiously waited for biopsy results the next day. This was the last piece of the puzzle and would tell us if the numbers were indicative of a rejection bout. We were thrilled to find out yesterday that the biopsy came back ZERO. Thank goodness.
So we're here at our "holiday house" enjoying lots of play time and resting. I will post again soon with lots of pictures. I have so many to share.
Thanks for all the prayers and I'm sorry for the delay in posting. Once we get into a routine, I hope I find some time each day to get on the computer. I miss sharing our fun times with you all.
11 comments:
Rock on!
Thank you so much for letting us know how you are, I know you are busy beyond belief so I can't even imagine what it took for you to write even this note. Thank you, now GET SOME REST! You are constantly in our thoughts and prayers and its so good to hear that you are doing well this week and settling into your "holiday house". Kiss that baby for us! xo Dusty&Cindy
Thank God! We pray that your days stay sunny and prayers continue to be answered. Love, JA, Kelly, and Hudson
What great news! We are all just so excited for you guys! Continued prayers and blessings:)
Great great news!! Thank you God!!
Jerry, Renee & callie
Great to hear the good news!! We are so excited for y'all. Enjoy every day!Give Rylynn lots of kisses for us.
Nene, Lee, Shanlee, Cade
So glad to hear. Thanks for taking your precious time to let us know.
Wonderful news! So happy to hear continued good reports on her biopsies! Yay for ZERO score!
Will pray for those undesireable high wedge pressures to become desirable. :) maybe all of this is just part of her body adjusting to having a new heart and just a little phase that she is going through.
so happy to hear about lots of playing, good times and REST! Great, great news! I saw a little pic of Ry visiting with her friends Keegan and just LOVE those long lashes of hers.....I bet one "bat" of those and Gilly and you just melt. :))))) Such a little princess!
I like your nickname for your temporary living situation - the "holiday house" that's very cool! what child wouldn't want to stay there! sounds like it will be full of lots of fun! I hope you three have a super blessed holiday - what precious moments these are.
Hope you have a blessed week and a super HAPPY Thanksgiving! :)
Have a Blessed Thanksgiving!! Praise God for the many blessings and your continued faith. So happy for your little family.
We hope you have a wonderful day today as it will have special meaning to you and yours - as well as all who have been moved and inspried by Ry's couragous fight and determination to get well!
Happy Thanksgiving to the Riojas family! May God continue to bless you this day and every day! The Roy Arldt family!
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