Biopsy Results and a Big Move

I fully intended to post our biopsy results on Friday, but as I tried to blog, the wifi kept kicking me off and I gave up.  But I have a few minutes and wanted to update you all.
The biopsy yielded us a score of 1R.  This is still a favorable score and usually means little to no adjustment to medications or regiment.  However, because of a few significant changes to portions of the biopsy, we were teetering between a 1R and a 2R.  Since we were still inpatient anyways, the transplant team decided to do a steroid pulse to nip this in case it was turning into a bout of rejection.  This meant starting Friday afternoon Ry received three heavy doses of steroids to knock her immune system out even more.  The doses wrapped up Sunday morning.  She had a few adverse reactions to the pulse, but overall handled it well.  All week we'll be on a very high dose orally, but we're weaning it back down each day.  We'll know on the 17th (during her next biopsy and cath) how her body is responding.
The steroids are making her eat like I've never seen before.  It's incredible to see her eating and enjoying it.  They are also making her a little restless at night.  She has been up for a couple of hours each night for the past couple of nights and just cries.  I can't wait to wean them down so that she can rest well again.

Ry's lung has opened up and is looking great!  We are on continued respiratory treatments, but we've been able to wean down to just three times each day.  We are both liking this change.  She's currently still on a nasal cannula at night, but we're in the process of weaning that each night as well.  Our hope is to go home without oxygen.

So the big move happened yesterday!  We are now on the 8th floor :)  After three and a half months in ICU, we're making our way closer to the door!!  It's so close I can barely stand it.  Tomorrow we'll go to the OR to have her PD catheter removed.  We have  had it capped for 9 days and she's done well.  So we're praying her kidneys continue to fully function and we have no regrets for getting it out.  It's an infection risk and with her weak immune system it's best to get it out.  I'm not sure what Ry will think about it being gone.  She cried the other day when I told her I was excited because her drain was coming out. 

Ry has made huge strides in her physical strength and rehabilitation.  Yesterday she stood for nearly 10 minutes!!  Today she took a lot of steps while I supported her.  She is such a determined little thing and I know she's just dying to really go.  I am so proud of her every accomplishment.  If she were any adult or older child she'd cry and give up, but I watch her trembling awkward legs and know she is using every ounce of strength.  She was actually sweating after today's PT session and even after a trip to the playroom.  Keep going Ry, I'm so proud of you!