So I apologize for it being so long since I've last posted. I have so many pictures I'm still trying to get on the last one, but I'm having a little difficulty.
But pictures or no pictures, I had to get on and share some hopeful news to all our friends and family. Ry has been doing wonderful here at the holiday house. She is silly, talkative, has a great appetite, and is such a joy. She is growing and developing so quickly. It really is amazing how much they open up once they leave those hospital walls. I hate thinking about how much she would have been set back if we had been there for a whole year. But wow, you can't tell it now. And her energy level is great!
On Friday, the 9th, I took Ry to a quiet mall north of town for the last of our Christmas shopping. (I did almost everything online this year to avoid having to get out. And tried to finish everything else up before most shoppers were getting out to the stores.) Our last stop in the mall that morning was at Dillards and we had just finished up. Ry had done great all morning, wearing her mask and staying in the stroller, but now she had had enough. So we strolled to the purses where it was empty of shoppers and I let her out of her stroller for a bit so she could stretch her legs. The displays were just close enough so that I did not have to hold her hands and she could scoot from one to another without letting go. HOWEVER, before long she had let go of the displays and was walking through them like crazy! She would shout "Mama I love this one, I'm so jealous!"
It was hilarious (Don't know where she learned I'm so jealous? I don't think she has a clue what it means!) I was so excited! I let her carry on for a bit just because I couldn't believe she was walking all on her own. I'm sure the employee did not appreciate me letting my child run through the department, but I was so thrilled I just let her go! I tried not to make a big deal about it in front of Ry, but I had to call Gilly and tell him. And from that moment on, she's been walking on her own! That day alone she walked for hours, what a joy to see her cruising again! I love it!
So all been well here and at Ry's check ups. We've adjusted some meds slightly based on labs every couple of days, but no major concerns. Yesterday was Rylynn's 10 week heart cath. Her pressures were impoved (YAY!) and things all look like they are continuing to trend in the right direction. Her chest Xray is still nice and clear, echo was great as was EKG. So the docs are quite pleased. Today we'll get her biopsy results and then ....
If the results are negative...
We get to go home for Christmas! Home. As in Lampasas. The place that Rylynn and I have not been in 54 weeks. I can't even explain how excited I am. Tonight might be the first time in over a year that Ry sees her swing! It's all she's talked about for the past three days. Gilly sent her a picture of it hanging and waitiing and she just can't wait.
We are still having to clean, paint and re-carpet our home after the renters moved out so we can't actually begin moving in till next week, but till then we are going to stay at Gilly's parents ranch house (where he's been staying for the past year). We can celebrate Christmas there. Together. And next week we'll start getting settled in our place.
We are praying with all our might that Ry's results come back favorable. If so we'll be on the road as soon as we get the call. We're hoping to make it home in time for a late dinner of Gilly's hamburgers and french fries. Mmmm... I hope we're home for dinner :)
11 comments:
I will pray for you all that you get to go home for Christmas (tears rolling down my face)! I can't imagine what you have been through and am thankful the many blessings throughout this journey.
Have no words - but I am feeling the MOST HAPPY and tingling feelings in my heart right now. What an incredible journey...what an incredible set of parents....what an incredible little girl. Giving you hugs is getting closer - it's been 70 days too long. I know that swing is ready to see Ry again! Love, Aunt Coo Coo
The news of Ry doing so well and you all being together makes me cry for joy. Thank you for sharing all the many things that have gone on throughout this long journey.
Wishing you all a Merry Christmas and a Happy New Year.
Doris & Rick Carter
Blessings.....yay!!!!!!
What fantastic news! I have tears in my eyes! I'll be praying that you'll be eating those hamburgers tonight!
I too have become a blubbering idiot. What truly glorious news!! You don't know me but I learned about Ry through a mutual friend and you three have become a part of my family ever since. I have prayed for Ry and her hospital friends every night and will continue to pray for these precious children. God Bless your family and Merry Christmas!! Stacy
VICTORY!!! (tears rolling down face!) "I wait quietly before God, for my victory comes from him. He alone is my rock and my salvation. My fortress where I will never be shaken.." PSALM 62: 1-2
Amazing wonderful extraordinary news! Amen!
Blubbering too! What wonderful news!! Hope reports have come back negative and y'all are on the road to Lampasas by now. Love the Psalm 62:1-2 verse.
With Love,
Linda, Carley, and family
It's a Christmas miracle! We couldn't be more thrilled! Love, the McGhee's
What great news! I hope you are digging into a Gilly Burger right now and cherishing being back with your family.
It will be a very Merry Christmas for you and Rylynn and the whole family.
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