This is the Dupe!!Wow, what a busy three weeks we've had since I've last blogged. I apologize for the delay. There are a lot of things that I didn't get to in the last few weeks that I usually enjoy this time of year... Christmas cards, going out to see Christmas lights, the usual baking (although I still managed to do enough eating), lots of Christmas shopping and decorating the house with my many tubs of lights, wreaths, etc. This year we managed a last minute tree, two nativity scenes and a wreath on the front door. At least clean-up will be a cinch.
I will post all about Christmas in a bit, but let me get to the rest of it first.
Gilly, Rylynn and I are officially living in Hewitt (on the edge of Waco). We have found a nice little duplex to rent and we are unpacked and really feeling at home. Unfortunately Gilly is having to split his time with us here and out at the ranch a few nights a week, but it's becoming our new normal and will all work out. We are lucky to have leased out our home in Lampasas to a family with three girls. We hope they enjoy the house as much as we did and we look forward to moving back one day.
For now, Rylynn is officially listed for a heart transplant in the 2 category. Being a 2 is good news because that means she is still relatively healthy, but it also means that we are the lowest priority group. Her PRA numbers came back about midline and her blood type makes her a good candidate. Based on all the information that the team put together, they predict that our wait could be about 12-15 months. This is assuming that Ry stays pretty healthy, continues to eat and grow, and we don't encounter any other major obstacles. We will work to keep her from being exposed to anything that could jeopardize her chances for that heart. If Ry were to contract any type of cold, stomach bug, etc. she would be ineligible for a transplant until completely healthy again.
We know the call can come at anytime and although the odds are that we won't be getting "the" phone call for a while, it's on your mind at all times. We are trying to keep a bag packed and be ready at any moment. It's taking some getting used, but I'm sure as time passes it will not consume our thoughts every minute. For now we just need your continued prayers that Rylynn can stay strong and healthy until our turn comes.
1 comment:
Thanks for the update! You are always on our minds and in our prayers! Glad you've settled into a routine!
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