We have some exciting news! Today, we were moved out of the ICU and into the cardiac unit on the 8th floor! Rylynn has been quite the super star around here. Usually kids are kept in the ICU for 10-14 days after surgery and she's proved herself after only 6 days. We are so lucky that she has been able to feed by bottle reaching each of our feeding requirements by the hair on her chinny-chin-chin. The doctor on the floor today told us that 99.9% of all Norwood kids are sent up with feeding tubes and 80% of them even go home with them. We have had to be persistent with our feeding, but she's doing incredible. We hope that she will continue to gain weight as she should and we can continue to feed her.
Now that we're on the 8th floor, we are able to care for her like new parents (or at least almost). We get to feed her, change her diapers, give her medicine and all those things that the ICU nurses have been doing. Another exciting bit, is that she had her forehead sticker removed today! She looks so different, but still looks exactly like Gilly. You will see in the pictures the sticker that I'm referring to; it's hard to miss.
Yesterday was the best Mother's Day ever! I was able to hold my sweet girl. The Docs removed her pacer wires at 4:30 and I had her in my arms as soon as I could. I even got to change my first diaper, what a great Mo Day present :) I will admit it was a bit of a disaster. She was screaming and I had poopy all over her socks and wires. Just as I got it all cleaned up, she had another episode before I could even close the diaper! Today Gilly and I have each had a little more practice. Unfairly though, she slept through Gilly's first try.
Now the day in winding down and we are pretty exhausted. It is going to be an interesting night. Downstairs we had one recliner in the room so that one of us (usually Gilly) could stay the night in the room with her. However, up here there is a pull-out couch that is only approximately 36" wide that we will have to snuggle up on. I'm not sure we'll be getting any sleep at all, but we're happy to be here with Miss Rylynn.
It's time to warm her bottle so I will run for now, but promise to get pics up soon. Hope you enjoy the update.
With love...
11 comments:
oh wow i can't believe those statistics! I loooove the pictures you sent :) You're right.. she looks completly different. she's beautiful andrea <3
i love you!! tell big poppy hello too ;) ha
oh by the way, the poopy on the socks.. that's awesome. :D love you!
Thank you so much for the update. I am asked about Rylynn as if we are all related. Our little church has really been praying for your little girl. Happy mother's day! (belated) but in your case I suppose everyday is like mother's day.
Congratulations to you and Gilly. Sounds like you have a very strong and determined little girl. Can't wait to see your blogs when she is a teenager :O)
love and prayers
Mike and Beth Coleman
Andrea,
Miss Rylynn does sound like a super star indeed. I'm so happy that things are going so well. Reading your post about the diaper just cracked me up. I remember when we had Kaden it always seemed like Ken got the easy changes. Just give it time and she will eventually give Gilly a good one to change,lol. Can't wait to see some more pics of your sweet princess.
Rylynn is such a trooper. We are so excited to hear of her progress and continue to pray for her recovery.
It will be two weeks and Jimmy is still waiting for his surprise;) LOL: Gilly - give it time and be ready!
Send pictures of that precious baby!
xoxo,
Jimmy, Cindy, Breken and Anistin
We are so happy to hear of Rylynn's progress. You guys are in our prayers always!
Gilly will get one - and you better blog about it;)
Send some pictures of that precious baby;)
xoxo,
Jimmy, Cindy, Breken and Anistin
Oops! Just realized what I did;) LOL! Enjoy the comments!
Cindy
Yea! What great news. Kathy sent me pics. She is a doll, Andrea! Prayers are still being sent y'alls way. Happy Belated Mother's Day. By the way, I feel your love for your daughter in your words you type. So happy for y'all!
Amazing little girl you have there! She's obviously an Aggie! Can't wait to meet her!
Hey girl!! How amazing God is!! I can't wait to meet your precious angel!
Amy Simpson
So glad to hear you had such an awesome 1st Mother's Day! Doesn't your heart have more LOVE than you ever imagined for that lil girl? Keep posting... It's great to see her progress!
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